ROHHAD

Children helping Children

Our super brave ROHHAD children who battle daily to survive have a group of new ROHHAD heroes helping them. Lauren Hunter (Aaron's big sister), has co-written a beautiful song for the ROHHAD children and she invited her friends from Singer Station School to help her perform the song. Lauren and the singer station children hope that their song will help raise awareness and much needed funds for medical research to help all the ROHHAD children and their families.

This is the song called 'Light the World for You' and you can buy it from itunes for 79p with all proceeds going to the charity. It is also available to buy on all major online music stores. If everyone you know and everyone they know buys this song research will begin soon in the UK. So please share it with everyone all your family and friends ask them to view it and support us by buying it. Children helping children ! they are true ROHHAD heroes. Inspiring  ( search 'Light the World for You' by Lauren Hunter to buy)  Thank you for your support

Picnic In The Park

The ROHHAD Association is super excited about our 1st ever charity Event ' Picnic In the Park' happening on Saturday the 1st of August at Moss O Balloch Park.  It is going to be an amazing fun family day out, we have pony rides, a magician, face painting, famous children's characters, beat the goalie, musical entertainment, bouncy castles, our own stall and over 200 amazing prizes to give away on the day through our tombola and raffle and much more.  Its FREE entry with a small charge for all activities.  Its open from 11am until 4pm.  If your free come along with the kids for a great day out in Balloch and help support our charity.  See you there ! only 7 sleeps to go !!

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