ROHHAD

Delighted to Ask for Support for our New Charity Ambassador – Emily Middlemas

SOME MORE AMAZING NEWS !!

Hello to all of our followers thank you so much for sharing Aaron and the ROHHAD Associations amazing news last night that the Marvel Universe LIVE! Heroes completed his puddle jump and are supporting his campaign to #GOMADJUMPFORROHHAD .

Today we want to talk to you all about this amazing young Lady here her name as some of you will know is Emily Middlemas she is such a beautiful talented young lady with the biggest heart to match her musical talents.

Emily is a huge supporter of the ROHHAD Association and of the children battling ROHHAD. She offered a few months ago to help the charity and Aaron in every way she could and agreed to be our charity ambassador. Since then she has progressed in the X Factor and has been super busy however having spoken to her last night she is still so determined to help Aaron just as soon as she is able too so we are asking all of you to please show your support for her in the way she has supported us!

Vote for her this week and every week she is on the show. As well as being the most talented on the show we cannot think of anyone better who deserves the votes. Her heart is huge she has helped Aaron and Lauren in so many ways and did not have too ! Lauren adores her and admires her Aaron simply put it 'I just love her mum !' She has spent time with them when they were sick in hospital and has cheered them up, she also has helped support our charity events and you may remember performed at our spring ball this year.

She is a genuine caring young lady who puts her heart and soul into everything. We will be voting for her every week and it's so easy to do ! You can download the X Factor app and vote 5 times completely free of charge ! You can also text for 35p (watch the show each week for her number !) I will post all details on how to vote each week on FB and twitter ! But hoping you will all get behind her as she truly deserves this ! Watch the show and I'm sure you will agree. Please get behind her and support her like she supports our charity !! I will hopefully be sharing with you all soon A statement from Emily about why she wants to help the ROHHAD Association but for now let's show her we appreciate her talent and support by voting !

#VOTEEMILY #EMILYTOWIN #EMILYHASTHEXFACTOR

Much thanks from all the team at ROHHAD Association

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Marvel Universe LIVE! #GOMADJUMPFORROHHAD

We are delighted to share with all our amazing supporters wonderful news. The team behind Marvel Universe LIVE! have been in touch with Aaron Hunters family and they have shown an incredible amount of support for him, his awareness campaign and the children battling ROHHAD. 4 of the actors who play the superheroes in the LIVE! show have completed the #GOMADJUMPFORROHHAD challenge and Aaron was so happy watching the video; he thanks them for completing the challenge for all the ROHHAD kids. Please click the link below to the Daily Record Article to see the challenge video and Aaron's response to it.

daily-record-news-marvel-universe-live-make-a-splash-for-aaron

They have also invited Aaron along to the LIVE! show when it comes to the SSE Hydro in Glasgow in January 2017. Aaron will have the opportunity to meet some of the heroes and watch the incredible Marvel Universe LIVE! show. As you can imagine he is already counting the sleeps. To help Aaron in his mission to raise awareness and much needed funds for medical research they have donated an incredible 10 Family VIP tickets for the LIVE! show when it is in Glasgow; to the ROHHAD Association. They will be raffled off to help raise funds for medical research into ROHHAD.

To be in with a chance of winning 1 of the family VIP tickets (family of 4) to see Marvel Universe LIVE! in Glasgow in January 2017 all you have to do is enter the Raffle. Tickets cost £5.00 and you can enter via this just giving campaign page

https://www.justgiving.com/campaigns/charity/rohhad/aaronsmarvelloussuperheroesraffle

Please remember to leave your contact details on the Just Giving page and do not click anonymous donation as we will not be able to process your entry without your name and email or contact number.

All of the team at the ROHHAD Association are so grateful to Claire and her team at Marvel Universe LIVE! for the support they have shown to Aaron and the children around the globe battling ROHHAD. Aaron has been incredibly happy since seeing this video and he reckons his special friends around the world will be too. He has even asked if this means that the real Iron Man (Robert Downey Jnr) will do the challenge now !! we can but hope ! Whatever happens though Aaron is on top of the world just now with the support he has had from Marvel Universe LIVE! and is counting the sleeps until January!!

If you want to help then you too can #GOMADJUMPFORROHHAD and text 'Jump29 £3.00' to 70070 or you can enter the Marvel Universe LIVE! raffle. You can also contact Lisa on 07917225276 to purchase Raffle tickets or Louise on 07881100083.

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Balloch Co-op Bag Packing BIG SUCCESS

We would like to say a huge THANK YOU to all of our amazing Volunteers, the adults and children who helped pack many bags ! on Saturday the 1st of October. We also wish to thank everyone who donated on the day and allowed our volunteers to pack you bags ! The total amount raised at the CO-OP Bagpacking fundraiser was £769.56 . It was a great day and we are truly grateful to all of you for helping us to raise awareness and much needed funds for ROHHAD Research. Our next one is the 29th of December at Morrisons in Dunbarton hope to see you all there !! Here are some snaps of the day -

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