Event

Happy New Year 2017 ! Bring on the Fundraising and Awareness !

HAPPY HAPPY NEW YEAR TO ALL OF OUR AMAZING SUPPORTERS AND AWESOME ROHHAD FAMILIES.

Apologies we have been a little quiet on the website these past few weeks, we were experiencing some server difficulties which look to be fully resolved now !!

What a fabulous year 2016 was for raising awareness and much needed funds to find a cure. We had such a fun time at all of our events, from the spring ball to our family Halloween night. Aaron has done a fabulous job of raising awareness with his social media video and some of the other kids have been doing the same, with families speaking to the press around the world and the kids doing what they can to raise funds and awareness. THANK YOU to every single person who helped last year, we are deeply grateful for all of the support.

We still have such a long way to go but all of us at the charity are excited for 2017, we are hoping that this will be the year that we raise enough funds for research in the UK to begin ! as well as National and Global awareness ! Also hoping to do some more blogging about the children this affects so that our supporters can gain some insight into ROHHAD and who they are helping.

We have so many exciting things planned and will be posting details of those soon and in the coming months so please keep following our website posts and social media pages @ROHHAD_GLOBAL on twitter and ROHHAD Association on Facebook.

In the meantime Aaron still has ongoing his social media campaign #GOMADJUMPFORROHHAD !! Our charity Ambassador Emily Middlemas recently completed her challenge and we cant wait to see more people getting involved including the X Factor Finalists.

If you have not done the challenge yet please see our homepage for how too ! and please Get Your Wellies On !!

Dates of our events just now are;

Saturday the 1st of April 2017 - Masquerade Spring Ball

Sunday the 30th of April - Glasgow Kiltwalk

Saturday the 6th of May - Intu Braehead Shopping Centre, fun day

4th of June - Aberdeen Kiltwalk

Saturday 29th July - Family Summer Fun Day

20th of August - Dundee Kiltwalk

Saturday 2nd September - Psychic Night

17th September - Edinburgh Kiltwalk

Saturday 28th of October - Family Halloween Disco

we are also hoping to have some bag packing, christmas street collections and possibly a christmas fayre.

(all information including venues, times and fun planned will be available by the end of January on our website)

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Balloch Co-op Bag Packing BIG SUCCESS

We would like to say a huge THANK YOU to all of our amazing Volunteers, the adults and children who helped pack many bags ! on Saturday the 1st of October. We also wish to thank everyone who donated on the day and allowed our volunteers to pack you bags ! The total amount raised at the CO-OP Bagpacking fundraiser was £769.56 . It was a great day and we are truly grateful to all of you for helping us to raise awareness and much needed funds for ROHHAD Research. Our next one is the 29th of December at Morrisons in Dunbarton hope to see you all there !! Here are some snaps of the day -

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Marstons ‘Walk The High Road’ Huge Success

All of the Team at the ROHHAD Association would like to say A HUGE THANK YOU to all those from Marstons who 'Walked The High Road for ROHHAD' On Wednesday the 28th of September. As expected the weather was miserable, it rained all day and the team were soaked to the skin !! However they did not let it dampen their spirits and everyone of them completed the 16 mile Hike from Balloch to Luss and Back again. The team had members from all over Scotland and the North of England. Aaron was there to cheer them on as they finished and he presented them with a medal; he wanted to say thank you for helping him and his special friends around the world fighting ROHHAD.

After completing all those miles, the team stayed on for The Queen Of The Loch Quiz night. It was a lot of fun and many of our local supporters came along as well as some special friends from America, Sedona's Mum and Dad were on vacation in Scotland; so the Team at Marstons were able to meet 2 families affected by the cruel disease ROHHAD.

It is never too late to sponsor the team !! please donate via this link

https://www.justgiving.com/fundraising/QueenoftheLochforROHHAD

Marstons have many more events coming up in the month of October so please check out your local one and see what they have planned. The Queen Of The Loch are hosting a Family Fun Day this Saturday (1st of October 2016) and we will be there with our face paints and glitter tattoos.

We are deeply grateful to all the Team at Marstons who are helping our charity and we are also grateful that they want to continue to do so. Once we know how much has been raised from all the events we will update you; for now though here are some of the fabulous photos from yesterday.

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