Event

BagPacking Event for ROHHAD at B&M’s largest UK store

We NEED YOUR HELP calling all family, friends and our local community. The ROHHAD Association will be BagPacking in B&M dunbarton store on Saturday and Sunday the 5th and 6th of December. This is expected to be the stores busiest weekend of the year. We would love to have buckets and packers on every till (8 in total) can you spare an hour or 2 or 3 !! The store has a policy adults only packing bags ! So we need as many of you as possible. This is a wonderful opportunity to raise much needed funds and we thank B&M for allowing us to help their customers on their busiest weekend and hopefully the customers will help us in return by donating. Call me on 07917225276 if you can help have a whole timetable to fill!! Finally if your shopping that weekend in B&M we will see you there ! Please be generous and make a donation Thank you ! Elisabeth (Aaron's mummy x)

Exciting news – Christmas Light Switch On at Loch Lomond and ‘Light The World For You’

So excited to let you all know that YOUR Radio have invited Lauren Hunter and Singer station along to perform the charity single at the roadshow and Christmas light switch on in Loch Lomond this year. They will be performing the charity single 'Light the World For You' at the Christmas Light Switch on in both Alexandria and Dunbarton. Come along if you can and see the children perform the beautiful and poignant song that Lauren co-wrote for Aaron and all the ROHHAD children. They will be performing in the hour before the lights are switched on at 5pm and it may even be just before the lights go on ! The days are not to be missed and are often lots of fun for all the kids and family. See you all there ! So excited PS don't forget to visit our charity stall on the day and buy a copy of the charity single !!.

Details - Alexandria Light Switch On event Saturday the 28th of November 2015 from 12pm until 5.30pm, Alexandria Main Street, West Dunbartonshire

Dunbarton Light Switch On event Sunday the 29th of November 2015 from 12pm until 5.30pm, Dunbarton High Street, West Dunbartonshire

https://www.facebook.com/WDCCouncil/posts/918300211589208:0

Raising Awareness on TV

On Thursday the 10th of September Elisabeth Hunter and Lauren Hunter will appear on STV's the Riverside Show live show at 7pm. They will both be interviewed about ROHHAD and their son and brothers experience of ROHHAD and the impact it has had on their family, as well as the charity and how members of the public can help the children. Aaron will be in the greenroom as he does not wish to be interviewed but does want to go along and see Lauren perform 'Light the World for You' the charity single with all her friends from Singer Station school (of music and performing arts). This is a wonderful opportunity to raise awareness for ROHHAD which is vital to our children. The charity thanks the Riverside show and STV for the opportunity to raise awareness. For anyone not living in Scotland who wishes to watch the show it is streamed live online at www.STVPlayer and its 7pm UK time.

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