We are delighted to share with all our amazing supporters wonderful news. The team behind Marvel Universe LIVE! have been in touch with Aaron Hunters family and they have shown an incredible amount of support for him, his awareness campaign and the children battling ROHHAD. 4 of the actors who play the superheroes in the LIVE! show have completed the #GOMADJUMPFORROHHAD challenge and Aaron was so happy watching the video; he thanks them for completing the challenge for all the ROHHAD kids. Please click the link below to the Daily Record Article to see the challenge video and Aaron's response to it.
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They have also invited Aaron along to the LIVE! show when it comes to the SSE Hydro in Glasgow in January 2017. Aaron will have the opportunity to meet some of the heroes and watch the incredible Marvel Universe LIVE! show. As you can imagine he is already counting the sleeps. To help Aaron in his mission to raise awareness and much needed funds for medical research they have donated an incredible 10 Family VIP tickets for the LIVE! show when it is in Glasgow; to the ROHHAD Association. They will be raffled off to help raise funds for medical research into ROHHAD.
To be in with a chance of winning 1 of the family VIP tickets (family of 4) to see Marvel Universe LIVE! in Glasgow in January 2017 all you have to do is enter the Raffle. Tickets cost £5.00 and you can enter via this just giving campaign page
https://www.justgiving.com/campaigns/charity/rohhad/aaronsmarvelloussuperheroesraffle
Please remember to leave your contact details on the Just Giving page and do not click anonymous donation as we will not be able to process your entry without your name and email or contact number.
All of the team at the ROHHAD Association are so grateful to Claire and her team at Marvel Universe LIVE! for the support they have shown to Aaron and the children around the globe battling ROHHAD. Aaron has been incredibly happy since seeing this video and he reckons his special friends around the world will be too. He has even asked if this means that the real Iron Man (Robert Downey Jnr) will do the challenge now !! we can but hope ! Whatever happens though Aaron is on top of the world just now with the support he has had from Marvel Universe LIVE! and is counting the sleeps until January!!
If you want to help then you too can #GOMADJUMPFORROHHAD and text 'Jump29 £3.00' to 70070 or you can enter the Marvel Universe LIVE! raffle. You can also contact Lisa on 07917225276 to purchase Raffle tickets or Louise on 07881100083.
