Items tagged GoMADforROHHAD

Balloch Co-op Bag Packing BIG SUCCESS

We would like to say a huge THANK YOU to all of our amazing Volunteers, the adults and children who helped pack many bags ! on Saturday the 1st of October. We also wish to thank everyone who donated on the day and allowed our volunteers to pack you bags ! The total amount raised at the CO-OP Bagpacking fundraiser was £769.56 . It was a great day and we are truly grateful to all of you for helping us to raise awareness and much needed funds for ROHHAD Research. Our next one is the 29th of December at Morrisons in Dunbarton hope to see you all there !! Here are some snaps of the day -

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Marstons ‘Walk The High Road’ Huge Success

All of the Team at the ROHHAD Association would like to say A HUGE THANK YOU to all those from Marstons who 'Walked The High Road for ROHHAD' On Wednesday the 28th of September. As expected the weather was miserable, it rained all day and the team were soaked to the skin !! However they did not let it dampen their spirits and everyone of them completed the 16 mile Hike from Balloch to Luss and Back again. The team had members from all over Scotland and the North of England. Aaron was there to cheer them on as they finished and he presented them with a medal; he wanted to say thank you for helping him and his special friends around the world fighting ROHHAD.

After completing all those miles, the team stayed on for The Queen Of The Loch Quiz night. It was a lot of fun and many of our local supporters came along as well as some special friends from America, Sedona's Mum and Dad were on vacation in Scotland; so the Team at Marstons were able to meet 2 families affected by the cruel disease ROHHAD.

It is never too late to sponsor the team !! please donate via this link

https://www.justgiving.com/fundraising/QueenoftheLochforROHHAD

Marstons have many more events coming up in the month of October so please check out your local one and see what they have planned. The Queen Of The Loch are hosting a Family Fun Day this Saturday (1st of October 2016) and we will be there with our face paints and glitter tattoos.

We are deeply grateful to all the Team at Marstons who are helping our charity and we are also grateful that they want to continue to do so. Once we know how much has been raised from all the events we will update you; for now though here are some of the fabulous photos from yesterday.

ROHHAD Association Avengers – Glasgow Kiltwalk – Amazing Effort by the Team

Fabulous Effort by Team ROHHAD Association Avengers

The Glasgow Kiltwalk 2016 seen a team of over 30 walkers participating in aid of the ROHHAD Association this year. It was a wonderful event full of laughter, fun, sweat, determination, tears and blisters !!. Massive Thank You to all of the team and all of those who walked in aid of our charity. We will receive every penny you raised in sponsorship this year and we will announce how much was raised once we receive the payment from the Kiltwalk. In the meantime here is a few photos from the day. Massive well done to everybody you all worked incredibly hard.

GoMADforROHHAD

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