Hi we thought we would share with you all a video of photos from 'Picnic in the Park'. Thank you to Gerry McGrane for photographing the event and making the video. We all had a brilliant day and appreciate the support received at the event.
Our super brave ROHHAD children who battle daily to survive have a group of new ROHHAD heroes helping them. Lauren Hunter (Aaron's big sister), has co-written a beautiful song for the ROHHAD children and she invited her friends from Singer Station School to help her perform the song. Lauren and the singer station children hope that their song will help raise awareness and much needed funds for medical research to help all the ROHHAD children and their families.
This is the song called 'Light the World for You' and you can buy it from itunes for 79p with all proceeds going to the charity. It is also available to buy on all major online music stores. If everyone you know and everyone they know buys this song research will begin soon in the UK. So please share it with everyone all your family and friends ask them to view it and support us by buying it. Children helping children ! they are true ROHHAD heroes. Inspiring ( search 'Light the World for You' by Lauren Hunter to buy) Thank you for your support
Everyone of these beautiful children are our inspiration - some of them are angels watching over the other children now and some of them continue to fight daily against the Evil 'ROHHAD' Watch our video of the amazing children see who we are fighting hard for and then become a 'ROHHAD Hero' and donate today to help us find a cure Thanks
