Items tagged ROHHADAwareness

Christmas Light Switch On – 2017 Loch Lomond Shores

We are delighted to share with you all that we have been chosen as one of the charities to be collecting this year at Loch Lomond Shores Christmas Light Switch on.

The date of the Light Switch on is Sunday the 19th of November.

We will be present all day at this incredible event. We will be sharing full details soon about what to expect at this incredible event and how our charity will be participating in that.

We cannot wait to spend the day at Loch Lomond Shores when they switch the Christmas Lights On. It is always a magical fun filled day that all the family can enjoy................. more details to follow soon

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Happy New Year 2017 ! Bring on the Fundraising and Awareness !

HAPPY HAPPY NEW YEAR TO ALL OF OUR AMAZING SUPPORTERS AND AWESOME ROHHAD FAMILIES.

Apologies we have been a little quiet on the website these past few weeks, we were experiencing some server difficulties which look to be fully resolved now !!

What a fabulous year 2016 was for raising awareness and much needed funds to find a cure. We had such a fun time at all of our events, from the spring ball to our family Halloween night. Aaron has done a fabulous job of raising awareness with his social media video and some of the other kids have been doing the same, with families speaking to the press around the world and the kids doing what they can to raise funds and awareness. THANK YOU to every single person who helped last year, we are deeply grateful for all of the support.

We still have such a long way to go but all of us at the charity are excited for 2017, we are hoping that this will be the year that we raise enough funds for research in the UK to begin ! as well as National and Global awareness ! Also hoping to do some more blogging about the children this affects so that our supporters can gain some insight into ROHHAD and who they are helping.

We have so many exciting things planned and will be posting details of those soon and in the coming months so please keep following our website posts and social media pages @ROHHAD_GLOBAL on twitter and ROHHAD Association on Facebook.

In the meantime Aaron still has ongoing his social media campaign #GOMADJUMPFORROHHAD !! Our charity Ambassador Emily Middlemas recently completed her challenge and we cant wait to see more people getting involved including the X Factor Finalists.

If you have not done the challenge yet please see our homepage for how too ! and please Get Your Wellies On !!

Dates of our events just now are;

Saturday the 1st of April 2017 - Masquerade Spring Ball

Sunday the 30th of April - Glasgow Kiltwalk

Saturday the 6th of May - Intu Braehead Shopping Centre, fun day

4th of June - Aberdeen Kiltwalk

Saturday 29th July - Family Summer Fun Day

20th of August - Dundee Kiltwalk

Saturday 2nd September - Psychic Night

17th September - Edinburgh Kiltwalk

Saturday 28th of October - Family Halloween Disco

we are also hoping to have some bag packing, christmas street collections and possibly a christmas fayre.

(all information including venues, times and fun planned will be available by the end of January on our website)

Happy New Year 2017 ! Bring on the Fundraising and Awareness !

HAPPY HAPPY NEW YEAR TO ALL OF OUR AMAZING SUPPORTERS AND AWESOME ROHHAD FAMILIES.

Apologies we have been a little quiet on the website these past few weeks, we were experiencing some server difficulties which look to be fully resolved now !!

What a fabulous year 2016 was for raising awareness and much needed funds to find a cure. We had such a fun time at all of our events, from the spring ball to our family Halloween night. Aaron has done a fabulous job of raising awareness with his social media video and some of the other kids have been doing the same, with families speaking to the press around the world and the kids doing what they can to raise funds and awareness. THANK YOU to every single person who helped last year, we are deeply grateful for all of the support.

We still have such a long way to go but all of us at the charity are excited for 2017, we are hoping that this will be the year that we raise enough funds for research in the UK to begin ! as well as National and Global awareness ! Also hoping to do some more blogging about the children this affects so that our supporters can gain some insight into ROHHAD and who they are helping.

We have so many exciting things planned and will be posting details of those soon and in the coming months so please keep following our website posts and social media pages @ROHHAD_GLOBAL on twitter and ROHHAD Association on Facebook.

In the meantime Aaron still has ongoing his social media campaign #GOMADJUMPFORROHHAD !! Our charity Ambassador Emily Middlemas recently completed her challenge and we cant wait to see more people getting involved including the X Factor Finalists.

If you have not done the challenge yet please see our homepage for how too ! and please Get Your Wellies On !!

Dates of our events just now are;

Saturday the 1st of April 2017 - Masquerade Spring Ball

Sunday the 30th of April - Glasgow Kiltwalk

Saturday the 6th of May - Intu Braehead Shopping Centre, fun day

4th of June - Aberdeen Kiltwalk

Saturday 29th July - Family Summer Fun Day

20th of August - Dundee Kiltwalk

Saturday 2nd September - Psychic Night

17th September - Edinburgh Kiltwalk

Saturday 28th of October - Family Halloween Disco

we are also hoping to have some bag packing, christmas street collections and possibly a christmas fayre.

(all information including venues, times and fun planned will be available by the end of January on our website)

ROHHADAwareness

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